Where do I begin??
I realize my last entry was in April and I took a couple months off as I was very pregnant and honestly not in the mood to write and THEN i became too busy to write so now in August i shall start up again!
So ~ JULY 1st Helena Frances Smolen Wuebben entered our lives... She was 9lbs. 4oz. and healthy!! Even though we had found out on valentines day that she was a girl I did not believe it until i met her! I was very anxious to see her face and see if she would squish it up as she gave her first cries and she did!!! Next she latched on to nurse with out any problems and i knew then that she would not have to fight as hard as her brother in this big wide world!! I know that she will have her own set of challenges as we all do but not that of Moebius Syndrome! Benjamin and Willem came to visit her hours after she entered this world and it was love at first sight for them as well! My boys totally love her always wanting to give her kisses and Ben can't stand to have her cry for even a moment! Always running to give her her pacifier or announce to me that she is crying ~ even if i am sitting right there beside her.
THEN
JULY 4th my mothers side of the family had our family reunion here in N.J. which had been planned for 2 years. And believe it our not we ventured out to celebrate with the clan. As the main gathering was at my sisters home in southern N.J. i was able to rest in the A.C. same as i would have been if i were at home only there were 45 people i was related to there. Including my grandmother which was great for her to be able to see Helena as a newborn. Some of my mothers siblings had not seen the boys in a while either so i was great for them to see how great Willem and Ben are doing!
THEN
JULY 10th we Celebrated Willem's 3rd birthday!! We had a small gathering with friends and cousins and were all super hero's in super hero capes i had some how found time to make!! Unfortunately Willem fell asleep while we all ate our pizza and we had to wait for him to wake up for cake (I was sad about that~even cried this year i can blame it on hormones but ... he did it last year too. I have a picture of him asleep with a nemo pinata on his lap and i thought i had planned it early enough so it would not happen again! BUT he likes to fall asleep during lunch and he still had a great time when he woke up we were all still here!) Just a bit odd when the guest of honor/host falls asleep at his own party!!
THEN
JULY 11th was the offical last day of Willem's Early Intervention therapys. As he was to turn 3 the next day. So that monday of that week we had our last P.T. session with Sherry who we had seen 2times a week for 2 years and then on wednesday we had our last session with Janine who again we had seen 2times a week for 2 years... They both helped Willem and our entire family in ways i cannot even begin to explain!! Far beyond helping my one year old who could barly sit up on his own to walk. AND with janine he figured out how to suck out of straw and blow bubbles and blew us all away with his speaking and self prompting (closing his lips to make the P,M,and B sound that he can't make on his own). And now as i write this i can't help but think about how much we miss them both!!!
THEN
JULY 11 th was the first day of the Moebius Syndrome Conference here in N.J. and what an amazing, emotional, informative weekend that was!! We met lots of other familes that have young children (and old) with moebius and adults and teens with moebius were so very inspiring to see just how sucessful they were. Of course there were some who were not at peace with them selves but I do hope and pray for them that they can find happiness within them selves. I know it is much easier said than done and i truly don't know how it feels to be in there skin. BUT i do know that true beauty is with in... Saturday evening there was a talent show and i don't know if there was a dry eye in the room! Simply amazing by how full of joy and life these children were!!
I will write more tomorrow to finish up about the conference and even more in july!!
THEN
JULY 4th my mothers side of the family had our family reunion here in N.J. which had been planned for 2 years. And believe it our not we ventured out to celebrate with the clan. As the main gathering was at my sisters home in southern N.J. i was able to rest in the A.C. same as i would have been if i were at home only there were 45 people i was related to there. Including my grandmother which was great for her to be able to see Helena as a newborn. Some of my mothers siblings had not seen the boys in a while either so i was great for them to see how great Willem and Ben are doing!
THEN
JULY 10th we Celebrated Willem's 3rd birthday!! We had a small gathering with friends and cousins and were all super hero's in super hero capes i had some how found time to make!! Unfortunately Willem fell asleep while we all ate our pizza and we had to wait for him to wake up for cake (I was sad about that~even cried this year i can blame it on hormones but ... he did it last year too. I have a picture of him asleep with a nemo pinata on his lap and i thought i had planned it early enough so it would not happen again! BUT he likes to fall asleep during lunch and he still had a great time when he woke up we were all still here!) Just a bit odd when the guest of honor/host falls asleep at his own party!!
THEN
JULY 11th was the offical last day of Willem's Early Intervention therapys. As he was to turn 3 the next day. So that monday of that week we had our last P.T. session with Sherry who we had seen 2times a week for 2 years and then on wednesday we had our last session with Janine who again we had seen 2times a week for 2 years... They both helped Willem and our entire family in ways i cannot even begin to explain!! Far beyond helping my one year old who could barly sit up on his own to walk. AND with janine he figured out how to suck out of straw and blow bubbles and blew us all away with his speaking and self prompting (closing his lips to make the P,M,and B sound that he can't make on his own). And now as i write this i can't help but think about how much we miss them both!!!
THEN
JULY 11 th was the first day of the Moebius Syndrome Conference here in N.J. and what an amazing, emotional, informative weekend that was!! We met lots of other familes that have young children (and old) with moebius and adults and teens with moebius were so very inspiring to see just how sucessful they were. Of course there were some who were not at peace with them selves but I do hope and pray for them that they can find happiness within them selves. I know it is much easier said than done and i truly don't know how it feels to be in there skin. BUT i do know that true beauty is with in... Saturday evening there was a talent show and i don't know if there was a dry eye in the room! Simply amazing by how full of joy and life these children were!!
I will write more tomorrow to finish up about the conference and even more in july!!
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